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Support Programs

Support and Networking Groups 

National Organizations

Lymphoma Research Foundation (LRF)
115 Broadway, Suite 1301
New York, NY 10006
(800) 500-9976
Email: helpline
Website: www.lymphoma.org

If there is not a lymphoma-specific support or networking group in your area, there may be one for patients with any type of hematological cancer, which includes lymphoma. To find out whether there is such a group in your areas, please contact your local cancer centers, community hospitals, or the following national organizations for their nearest local chapter.

Cancer Care, Inc.
275 Seventh Avenue
New York, NY 10001
(212) 712-8080
(800) 813-HOPE (4673)
Email: info@cancercare.org
Website: www.cancercare.org

~ Cancer Care is a social service agency founded to help people with cancer, their families, and friends cope with the impact of cancer. This organization is solely dedicated to providing psychological support to people with cancer and their families, and community education programs for the general public. Cancer Care also extends its services to caregivers and professionals, providing vital information and assistance.

Cancer Support Community
1050 17th Street NW
Washington, DC 20036
(202) 659-9709
Website: www.cancersupportcommunity.org

~ In July 2009, The Wellness Community and Gilda’s Club Worldwide joined forces to become the Cancer Support Community (CSC). The Cancer Support Community continues to optimize patient care by offering support groups, counseling, education and healthy lifestyle programs. The Cancer Support Community provides these emotional and social support services through a network of nearly 50 local affiliates, more than 100 satellite locations and online. To find a community-based center in your area, visit www.cancersupportcommunity.org/FindaLocalProgram.  Framing Life With Lymphoma is a new educational program CSC designed to enhance patient and physician communication. To view this resource, visit www.framinglifewithlymphoma.org.

The Leukemia & Lymphoma Society
1311 Mamaroneck Avenue, 3rd Floor
White Plains, NY 10605
(914) 949-5213
(800) 955-4572
(914) 821-3607 (fax)
Email: infocenter@leukemia-lymphoma.org
Website: www.leukemia-lymphoma.org

~ The Leukemia & Lymphoma Society is a national voluntary health agency that supports medical research and provides health educational materials, financial assistance, education programs, information and referral services, support groups, and a professionally supervised peer support program for patients with leukemia, lymphoma, and myeloma and their families. Some Spanish publications are available.

International Waldenstrom's Macroglobulinemia Foundation (IWMF)
2300 Bee Ridge Road, Suite 301
Sarasota, FL 34239-6226
(941) 927-4963
(941) 927-4467 (fax)
Email: iwmf1@juno.com
Website: www.iwmf.com

~ IWMF is dedicated to providing patient support and education and research funding leading to improved treatment and an ultimate cure. IWMF also provides various publications, including a treatment options handbook and an overview on WM.

Cutaneous Lymphoma Foundation (CLF) (formerly Mycosis Fungoides Foundation - MFF)
P.O. Box 374
Birmingham, MI 48012-0374
(248) 644-9014
Website: www.CLFoundation.org 

~ CLF offers a CTCL-MF online support/information listserv that consists of over 700 members, from 20 different countries who share their experiences living with Cutaneous Lymphomas, MF, Sezary Syndrome, and other related diseases. CLF also publishes a quarterly newsletter and a non-clinical Q&A pamphlet for recently diagnosed patients.

E-mail Chat Groups/Listservers

(Note: you are not obligated to provide your full name when registering for e-mail or listserver groups.)

To participate in Web Magic Lymphoma Message Boards (formerly Lymphoma Research Foundation's Message Board) for Hodgkin's Disease or non-Hodgkin's lymphoma, please visit http://forums.lymphoma.com/

Forum on Lymphoma is for patients, family, educators and medical professionals interested in sharing information and/or support for those affected by lymphoma. To subscribe, send a message to lymphoma-subscribe@yahoogroups.com. To post messages to the group, e-mail lymphoma@yahoogroups.com.

Disease-Specific Listservers

Hodgkin's Disease
To subscribe, e-mail listserv@solar.org. Leave the subject line blank. The message should say "Subscribe Hodgkin's." For more information, or to read archives, please visit www.hodgkinsdisease.org.

Chronic Lymphocytic Leukemia (CLL)/ Small Lymphocytic Lymphoma (SLL)
Anybody can post messages.  To subscribe to the list and receive information, send an e-mail to SLL-CLL-edu-subscribe@yahoogroups.com.

Diffuse Large Cell Lymphoma
To subscribe, e-mail nhl-dlc-subscribe@yahoogroups.com. To post messages to the group, e-mail nhl-dlc@yahoogroups.com.

Follicular Lymphoma
To subscribe, e-mail nhl-follic-subscribe@yahoogroups.com. To post messages to the group, e-mail nhl-follic@yahoogroups.com.

Gastric Lymphoma
To subscribe, e-mail gastric_lymphoma-subscribe@yahoogroups.com. To post messages to the group, e-mail gastric_lymphoma@yahoogroups.com.

Mantle Cell Lymphoma
To subscribe or for additional information and listserver archives, please visit listserv.ACOR.org/mantlecell.

Mucosa-Associated Lymphoid Tissue (MALT)/Monocytoid Lymphoma
To subscribe, e-mail nhl-malt-subscribe@yahoogroups.com. Leave the subject and message lines blank. To post messages to the group, e-mail nhl-malt@yahoogroups.com.

Mycosis Fungoides/Cutaneous T-Cell Lymphoma (CTCL)
The manager of the listserver is Judy Jones. She can be reached via e-mail at judy@clfoundation.org. To subscribe, e-mail listserv@listserv.acor.org. The message should say "Subscribe CTCL-MF." To post messages to the group, e-mail ctcl-mf@listserv.acor.org. Archives can be found at listserv.acor.org/archives/ctcl-mf.html.

Non-Hodgkin's Lymphoma
To subscribe, e-mail nhl-subcribe@yahoogroups.com. To post messages to the group, e-mail nhl@yahoogroups.com.

Non-Hodgkin's Lymphoma - Low Grade
It is for information posts only; it is not a chat group. To subscribe, e-mail nhllow-subscribe@yahoogroups.com. To post messages to the group, e-mail nhllow@yahoogroups. For more information or to become a member, please visit groups.yahoo.com/group/nhl-low/.

Non-Hodgkin's Lymphoma - Other
A discussion list for postings of alternative, complementary and conventional therapies. To subscribe, e-mail nhl-other-subscribe@yahoogroups.com. Leave the message line blank. To post messages to the group, e-mail nhl-other@yahoogroups.com.

On-Line Central Nervous System Support Group
Website: braintrust.org
Email: lymphoma-captain@braintrust.org
A CNS lymphoma survivor contacted LRF to let us know he is facilitating a lymphoma support group through the Brain Trust organization.  Contact the above website for more information.

Waldenstrom's Macroglobulinemia
International Waldenstrom's Macroglobulinemia Foundation's (IWMF) WM Talklist~ to subscribe, send e-mail to: Join-iwmf@iwmf.talklist.com. Include your full name in the subject line and leave the message blank.

WSMG NET listserver~to subscribe, e-mail listserv@listserv.acor.org. Leave the subject line blank. The message should say "Subscribe WSMG NET your name." To post messages to the group, e-mail wsmg-net@listserv.acor.org. You have the option to subscribe anonymously by typing "Subscribe WSMG NET anonymous." Please note that your e-mail address will appear on posted messages even if you subscribe anonymously.

Treatments & Side Effects Listservers

Bone Marrow Transplants (BMT)
BMT-TALK
To subscribe, e-mail listserv@listserv.acor.org . Enter the message "Subscribe BMT-TALK last name, first name." To post messages to the group, e-mail bmt-talk@listserv.acor.org. If you experience any difficulties, e-mail lsimmons@hsph.harvard.edu.

GVHD
This list is a support group for post-BMT patients. To subscribe, e-mail listserv@listserv.acor.org. Leave the subject line blank. The message should say "Subscribe GVHD your name." To post messages to the group, e-mail GVHD@listserv.acor.org. You have the option to subscribe anonymously by typing "Subscribe GVHD anonymous." Please note that your e-mail address will appear on posted messages even if you subscribe anonymously.

Lymphedema
To subscribe, e-mail listserv@listserv.acor.org. Leave the subject line blank. The message should say "Subscribe Lymphedema your name." To post messages to the group, e-mail lymphedema@listserv.acor.org. You have the option to subscribe anonymously by typing "Subscribe lymphadema anonymous." Please note that your e-mail address will appear on posted messages even if you subscribe anonymously.

Other Related Listservers

Rare Cancer
To subscribe, e-mail listserv@listserv.acor.org. Leave the subject line blank. The message should say "Subscribe Rare your name." To post messages to the group, e-mail rare-cancer@listserv.acor.org. You have the option to subscribe anonymously by typing "Subscribe rare anonymous." Please note that your e-mail address will appear on posted messages even if you subscribe anonymously.

Caregivers
To subscribe, e-mail listserv@listserv.acor.org. Leave the subject line blank. The message should say "Subscribe Caregivers your name." To post messages to the group, e-mail caregivers@listserv.acor.org. You have the option to subscribe anonymously by typing "Subscribe Caregivers anonymous." Please note that your e-mail address will appear on posted messages even if you subscribe anonymously.

Association of Cancer Online Resources, Inc.
www.acor.org

Yahoo Groups
www.yahoogroups.com