Support and Networking Groups
If there is not a lymphoma-specific support or networking group in your area, there may be one for patients with any type of hematological cancer, which includes lymphoma. To find out whether there is such a group in your areas, please contact your local cancer centers, community hospitals, or the following national organizations for their nearest local chapter.
Cancer Care is a social service agency founded to help people with cancer, their families, and friends cope with the impact of cancer. This organization is solely dedicated to providing psychological support to people with cancer and their families, and community education programs for the general public. Cancer Care also extends its services to caregivers and professionals, providing vital information and assistance.
Cancer Support Community
In July 2009, The Wellness Community and Gilda's Club Worldwide joined forces to become the Cancer Support Community (CSC). The Cancer Support Community continues to optimize patient care by offering support groups, counseling, education and healthy lifestyle programs. The Cancer Support Community provides these emotional and social support services through a network of nearly 50 local affiliates, more than 100 satellite locations and online. To find a community-based center in your area, visit www.cancersupportcommunity.org/FindaLocalProgram. Framing Life With Lymphoma is a new educational program CSC designed to enhance patient and physician communication. To view this resource, visit www.framinglifewithlymphoma.org.
The Leukemia & Lymphoma Society
The Leukemia & Lymphoma Society is a national voluntary health agency that supports medical research and provides health educational materials, financial assistance, education programs, information and referral services, support groups, and a professionally supervised peer support program for patients with leukemia, lymphoma, and myeloma and their families. Some Spanish publications are available.
The International Waldenström's Macroglobulinemia Foundation (IWMF) is a patient-founded and volunteer-led nonprofit organization dedicated to a simple but compelling vision: Support everyone affected by Waldenström's macroglobulinemia (WM) while advancing the search for a cure.
To accomplish this vision, the IWMF offers several invaluable benefits:
Cutaneous Lymphoma Foundation (CLF) (formerly Mycosis Fungoides Foundation - MFF)
CLF offers a CTCL-MF online support/information listserv that consists of over 700 members, from 20 different countries who share their experiences living with Cutaneous Lymphomas, MF, Sezary Syndrome, and other related diseases. CLF also publishes a quarterly newsletter and a non-clinical Q&A pamphlet for recently diagnosed patients.
E-mail Chat Groups/Listservers
(Note: you are not obligated to provide your full name when registering for e-mail or listserver groups.)
To participate in Web Magic Lymphoma Message Boards (formerly Lymphoma Research Foundation's Message Board) for Hodgkin's Disease or non-Hodgkin's lymphoma, please visit http://forums.lymphoma.com/
Forum on Lymphoma is for patients, family, educators and medical professionals interested in sharing information and/or support for those affected by lymphoma. To subscribe, send a message to firstname.lastname@example.org. To post messages to the group, e-mail email@example.com.
Chronic Lymphocytic Leukemia (CLL)/ Small Lymphocytic Lymphoma (SLL)
Mantle Cell Lymphoma
Mucosa-Associated Lymphoid Tissue (MALT)/Monocytoid Lymphoma
Mycosis Fungoides/Cutaneous T-Cell Lymphoma (CTCL)
Non-Hodgkin's Lymphoma – Low Grade
Non-Hodgkin's Lymphoma - Other
On-Line Central Nervous System Support Group
WSMG NET listserver~to subscribe, e-mail firstname.lastname@example.org. Leave the subject line blank. The message should say "Subscribe WSMG NET your name." To post messages to the group, e-mail email@example.com. You have the option to subscribe anonymously by typing "Subscribe WSMG NET anonymous." Please note that your e-mail address will appear on posted messages even if you subscribe anonymously.
Treatments & Side Effects Listservers
Bone Marrow Transplants (BMT)
Other Related Listservers
To subscribe, e-mail firstname.lastname@example.org. Leave the subject line blank. The message should say "Subscribe Caregivers your name." To post messages to the group, e-mail email@example.com. You have the option to subscribe anonymously by typing "Subscribe Caregivers anonymous." Please note that your e-mail address will appear on posted messages even if you subscribe anonymously.
Association of Cancer Online Resources, Inc.