NATIONAL CAPITAL CHAPTER
Letter from National Capital Chapter President, Joe Pasanello
We are approaching the mi -point of 2014 and we have had a strong Spring. We give thanks to our many dedicated sponsors and to the LRF national office for their guidance and leadership. Most of all we are thankful to the hundreds of local volunteers, along with their friends and families, for their remarkable efforts throughout the year. Without the volunteer base, our efforts would be less than optimal. All you need to do is look at this year's Lymphomathon, held on April 27. We had over 300 people participate and while this was Laurie's first time, the reaction and response to our efforts was extremely well received. The energy and friendship was overwhelming. It was great to see how a number of volunteers, most meeting for the first time, came together as a team. In fact, they implemented a few impromptu adjustments that fit with the day's events, so we will adopt a number of their ideas for next year.
As a reminder, the unrivaled Research Ride is schedule on Sunday, September 28, 2014 in Montgomery County. As I have written before the Ride is a model of excellence and shows what a dedicated group of volunteers can accomplish. And for those of you looking for more and willing to build on the momentum of the Lymphomathon, the Research Ride is a fantastic opportunity to participate and help drive the mission.
As we approach Summer, we begin to think September. Why? Because September is Blood Cancer Awareness Month and it offers many opportunities for volunteers to "raise your voice" in support of lymphoma research! And it is never too early to think about raising awareness in your community. Last year, we attended a number of proclamation events in VA and MD. If you would like to join this effort, please make LRF aware and they'll be ready to help.
Advocacy Chair, Mike Falk, continues our advocacy efforts to educate and raise the level of awareness of our elected official's about the LRF and Lymphoma, as well as lobby their consideration for legislation that touches the lives of lymphoma survivors and their families. Recently, Mike briefed Senator Barbara Mikulski's staff and is working to schedule some time with the staff of Senator Ben Cardin.
Finally, key leadership positions remain open, such as Outreach Chair, Communications Chair and Lymphomathon Chair. Filling these roles is critical to a sustainable and effective mission driven approach. We have a very diverse and accomplished group of volunteers and survivors in the National Capital are. The goal is to channel those talents in support of our collective efforts to eradicate lymphoma and serve those touched by this disease.
Warm regards and all the best in health,
8th Annual Lymphoma Research Ride
Join us on Sunday, September 28nd for a fun-filled day of riding, food and music. Riders can choose to do a 25, 39 or 50 mile route through the rural countryside of northern Montgomery County. The routes are geared for all types of riders. Last year over $500,000 was raised.
Please join us this year to help reach our goal of $550,000.
The Lymphoma Research Ride is a non-competitive bike ride where survivors, family, friends, individuals, community and corporate teams ride in honor and in memory of those whose lives have been touched by lymphoma. Since its inception, the Lymphoma Research Ride has raised over $3.0 million for lymphoma research. Please visit www.lymphoma.org/Ride2014 to register for the Ride. For additional information, please contact Laurie Alfano-Cristaldi at (201) 320-3623 or firstname.lastname@example.org.
Advocacy Call to Action
Lymphoma Research Foundation Nation Capital Chapter advocates are working to ensure that lymphoma patients have equal and appropriate access to all cancer treatments.
Currently, many patients have to pay significantly more out-of-pocket for oral treatments (i.e., pills) than they do for intravenous treatments. Please join the Foundation in advocating for legislation that would ensure oral treatments are covered in the same manner as intravenous treatments.
Blood Cancer Support Group
Beginning on Thursday, September 13th the Lymphoma Research Foundation will partner with the Leukemia and Lymphoma Society and Life with Cancer to present a monthly support group for blood cancer patients.
Every group will be facilitated by a licensed social worker and an oncology nurse. For more information or to register please visit the Life with Cancer website.
Making a Difference: The LRF Advocacy Program
Our local Advocacy Program focuses on taking action on laws, policies and positions that affect every lymphoma patient and survivor. By contacting elected officials via phone calls, e-mail and letters in support of these priorities, local advocates help LRF to make lymphoma a national health priority.
At present, LRF Advocacy Chairs and Advocacy Committees are working on a letter to the editor campaign. Advocates will be involved in submitting letters and working collaboratively to have letters published in local media outlets. The campaign strategy should be informed by the number of advocates who will be targeted for participation. LRF has chosen three policy topics for chapters to choose from: federal investment in lymphoma and cancer research; federal funding for the CDC Hematological Cancer Education Program; and U.S. drug shortages.
If you would like to become more involved in helping to organize chapter activities in the National Capital area, please contact:
Chapter Board / Leadership
Chapter President: Joe Pasanello