NATIONAL CAPITAL CHAPTER
Letter from National Capital Chapter President, Joe Pasanello
2013 was a year of transition and we seized upon opportunities starting with a networking event early in the New Year, the chapter realized a renewed interest and success in advocacy, fundraising and outreach/awareness efforts. Many thanks to our dedicated sponsors and supporters at the LRF national office for their guidance and leadership. Most of all we are thankful to the hundreds of local volunteers, along with their friends and families, for their remarkable efforts throughout the year including support for the successful Lymphomathon in April and the truly incredible Research Ride in September. While the Research Ride is a national event, we are proud that this fun yet critical fundraising effort is part of the National Capital area. As a benchmark for other Chapter activities, the Ride is a model of excellence and shows what a dedicated group of individuals can accomplish.
I would like to recognize Michael Falk who took over as Advocacy Chair so that I could step into my new role as Chapter President. I am truly excited to jump into 2014 and support the Chapter in a deeper way. We still have some key leadership positions open, such as Outreach Chair, Communications Chair and Lymphomathon Chair. Filling these roles is critical to a sustainable and effective mission driven Chapter. We have a very diverse and accomplished group of Chapter members in the National Capital and the goal is to channel those talents in support of our collective efforts to eradicate lymphoma and serve those touched by this disease.
Looking ahead to 2014 the National Capital Chapter will continue to build on our advocacy and outreach successes that resulted in Congressional support for the Oral Chemotherapy Parity Bill, raised elected officials' awareness about LRF and lymphoma, and educated our local communities through a number of Blood Cancer Awareness proclamations in VA and MD. More importantly, we will strive to build and grow the Chapter into a cohesive team of volunteers and supporters, in order to serve the mission and expand the reach of LRF.
May your holidays be blessed with love and your New Year be a safe and healthy one.
New Chapter Leadership
The National Capitol Chapter is pleased to welcome Joe Pasanello as the new Chapter President. Joe brings with him a wonderful passion for LRF and its mission along with a great deal of experience and knowledge as our former Advocacy Chair.
When asked about his new role Joe said, "I thank LRF for the opportunity and look forward to working along-side so many dedicated volunteers on behalf of the growing number of survivors and their families in the effort to eradicate lymphoma. The National Capital area provides a unique opportunity to raise awareness and advocate for issues important to our community. As a lymphoma survivor I recognize the need and benefit of a strong and vibrant Chapter. With your help, together we can build a Chapter that is both effective and sustainable."
We are also excited to announce that Michael Falk will be taking over the title of Advocacy Chair. Michael has already played a key role as a member of the Advocacy Committee by going on legislative visits and working on our Blood Cancer Awareness Month resolutions. There's no doubt the Advocacy Program will continue to thrive under his direction.
7th Annual Lymphoma Research Ride
Join us on Sunday, September 22nd for a fun-filled day of riding, food and music. Riders can choose to do a 25, 39 or 50 mile route through the rural countryside of northern Montgomery County. The routes are geared for all types of riders. Last year we raised over $530,000. Please join us this year to help reach our goal of $550,000.
The Lymphoma Research Ride is a non-competitive bike ride where survivors, family, friends, individuals, community and corporate teams ride in honor and in memory of those whose lives have been touched by lymphoma. Since its inception, the Lymphoma Research Ride has raised over $2.5 million for lymphoma research. Please visit www.lymphoma.org/Ride2013 to register for the Ride. For additional information, please contact Meghan McNamee at 646-465-9106 or email@example.com.
Advocacy Call to Action
Lymphoma Research Foundation Nation Capital Chapter advocates are working to ensure that lymphoma patients have equal and appropriate access to all cancer treatments.
Currently, many patients have to pay significantly more out-of-pocket for oral treatments (i.e., pills) than they do for intravenous treatments. Please join the Foundation in advocating for legislation that would ensure oral treatments are covered in the same manner as intravenous treatments.
3rd Annual Lymphomathon is a Big Success
Thank you to all of the survivors, caregivers, friends and family who came out on a sunny Maryland Sunday to take a step to find a cure.
With another $6,000 we can make our goal and bring us one step closer to eradicating this disease. Donations can still be made online. Don't forget to ask at work about your employer's matching gifts program.
There's still time to earn that LRF outdoor fleece/nylon blanket, every walker who raises $500 or more is eligible.
Special thanks to our sponsors and in-kind donors: Celegene, Millennium: The Takeda Oncology Company, Spectrum Pharmaceuticals, Genentech, Corner Bakery Cafe and Whole Foods.
You remain the key to everything we do and we look forward to walking with you in 2014.
Veiw photos from the 2013 Lymphomathon.
Blood Cancer Support Group
Beginning on Thursday, September 13th the Lymphoma Research Foundation will partner with the Leukemia and Lymphoma Society and Life with Cancer to present a monthly support group for blood cancer patients.
Every group will be facilitated by a licensed social worker and an oncology nurse. For more information or to register please visit the Life with Cancer website.
Making a Difference: The LRF Advocacy Program
Our local Advocacy Program focuses on taking action on laws, policies and positions that affect every lymphoma patient and survivor. By contacting elected officials via phone calls, e-mail and letters in support of these priorities, local advocates help LRF to make lymphoma a national health priority.
At present, LRF Advocacy Chairs and Advocacy Committees are working on a letter to the editor campaign. Advocates will be involved in submitting letters and working collaboratively to have letters published in local media outlets. The campaign strategy should be informed by the number of advocates who will be targeted for participation. LRF has chosen three policy topics for chapters to choose from: federal investment in lymphoma and cancer research; federal funding for the CDC Hematological Cancer Education Program; and U.S. drug shortages.
If you would like to become more involved in helping to organize chapter activities in the National Capital area, please contact:
Chapter Board / Leadership
Chapter President: Joe Pasanello