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Welcome to the Lymphoma Support Network!

The Lymphoma Support Network (LSN) is a one-to-one peer support program that connects patients and caregivers with volunteers that have experience with the same type of lymphoma, treatments, or challenges, for mutual emotional support and encouragement. You may find this useful whether you or a loved one is newly diagnosed, in treatment, or in remission.


The following information will help you decide if LSN is right for you, how to sign up, and how to become a volunteer:

  1. How do I join the Lymphoma Support Network?
    In order to participate in the program, you will be asked to complete a questionnaire and provide information about yourself, including your medical and treatment history.

  2. How will I be matched in the Lymphoma Support Network?
    You will be asked to rank, in order of importance, the following matching criteria: diagnosis, specific treatments, age, gender, geographic location and preferred method of communication. The Coordinator will contact you to review your application in order to get a better understanding of your needs.

  3. How long will it take to match me with a buddy through the Network?
    On average, it takes between one to two weeks to make a match. The Coordinator will consider personal preferences and carefully select the best match from the Network's database. The Coordinator is actively involved in addressing questions and concerns that both participants may have before and after the match is made.

  4. How should I contact my Lymphoma Support Network buddy?
    Depending on personal preference and geographic proximity from one another, you may choose to communicate either over the phone, by email, or through letters. It is up to you and your buddy to decide not only the method but also how often you communicate.

  5. What if I cannot answer some of the questions on the questionnaire?
    If you are unsure about how to answer any of the questions, you can leave that particular question blank and contact the Coordinator once you have obtained the information.  For questions regarding your medical history, such as type of lymphoma, it is recommended that you consult your physician.

  6. What if I, as the caregiver, think a patient will benefit from this program but cannot get the patient interested in joining the program? Should I fill out the questionnaire for them and hope that they will change their mind when a match is made?
    Please do not fill out the questionnaire for another person, no matter how good your intentions may be. You can try offering them the opportunity to join the program by explaining the purpose and why you feel it would be important.

  7. The buddy I was matched with was not what I was looking for. What do I do?
    If, for any reason, you are not satisfied with the individual you are matched with, please do not hesitate to contact the Coordinator. We will make every effort to find another, more suitable match for you.

  8. What if my needs change over time?
    The program exists to meet your needs at any point during the illness, whether newly diagnosed, in treatment or in remission. For example, some individuals may prefer to be matched for a limited time during treatment, while others may be looking for someone with whom they can start an ongoing, mutually supportive friendship. If you would like to be matched with more than one buddy, please contact the Coordinator.

If you have additional questions please email Izumi Nakano, Patient Services Manager, at Support, or call 800-500-9976 or 310-204-7040.

Click here to complete the online application questionnaire.

Click here for Tips on how to be a great buddy.

 

It is not the intent of this program to offer advice or provide counseling. Because of the challenges of living with lymphoma, both patients and caregivers may be faced with overwhelming issues. There may be individuals interested in participating in the Lymphoma Support Network whose needs lie beyond the scope of the program. LRF will determine eligibility for the program based on the information provided in the questionnaire and the needs of the individual.