Lymphoma Research Foundation Ambassadors Program
The LRF Ambassador program is comprised of individuals from around the country, each with a personal lymphoma story. The ambassadors represent several subtypes and treatment options for the disease. The group includes current patients, caregivers of patients, and survivors. The LRF Ambassador program has been instrumental in raising awareness for lymphoma and providing hope to others affected by the disease. Ambassadors are able to share their individual stories and experiences navigating this diagnosis.
Bob was diagnosed with mantle cell lymphoma in 2000. He was treated initially with an autologus stem cell transplant, but relapsed three years later. In 2004, Bob underwent a RICE chemotherapy regimen followed by a matched unrelated donor transplant. He is now in remission and today, Bob enjoys traveling and walks about four miles each day. He lives with his wife in Chicago, IL.
Bob was diagnosed with follicular lymphoma in 2006. He underwent R-CVP chemotherapy followed by two years of maintenance Rituxan and has been in remission for the past seven years. Bob is a Human Resources Information Technology manager for a high-tech company based in Phoenix, AZ. Bob is also a 4th degree black belt in Kenpo karate. He lives in Phoenix with his wife and two daughters.
Susan's husband was diagnosed with follicular lymphoma during his last semester of college. He underwent multiple treatments, including chemotherapy and antibody treatments, each with short term success. In 2009, he underwent a stem cell transplant and is now living cancer free. Susan is a lawyer in Washington DC, where she lives with her husband.
Juliana was diagnosed with follicular lymphoma in 2011 at the age of 27. After attending the Lymphoma Research Foundation's (LRF) North American Educational Forum on Lymphoma in 2012, she sought out multiple medical opinions and ultimately received three cycles of rituximab with prednisone. In April of 2013 she celebrated a cancer free scan. Juliana is a family nurse practitioner and lives in Los Angeles, CA with her husband.
Anne was diagnosed in 1998 with anaplastic large cell lymphoma. She had one year of chemotherapy followed by a stem cell transplant. Anne has been cancer free since her transplant in 1999. Today, she enjoys buying and selling vintage and designer jewelry, going to movies, and spending time with friends and family. Anne lives in San Francisco, CA with her husband and teenage children.
Geoff was diagnosed in 2009 with chronic lymphocytic leukemia/small lymphocytic lymphoma. He has had general immune system failure, but is currently following a watch and wait approach. Geoff feels good and continues to be active in his local LRF chapter and participates each year in the Lymphoma Research Ride. He lives in Washington, DC with his wife.
Judy was diagnosed with cutaneous T-cell lymphoma in 1990. After several failed treatments she enrolled in a clinical trial and is now in remission. Judy founded the Cutaneous Lymphoma Foundation in 1998. Today, Judy enjoys participating in two book clubs and spending time with her four grandchildren. She lives with her husband in Michigan.
Paul was diagnosed in 1996, at the age of 29, with diffuse large B-cell lymphoma. He underwent eight cycles of chemotherapy followed by more than 20 radiation treatments. Almost twenty years later, Paul remains in remission. Paul participates each year in the Greater New York Lymphomathon, and continues to look forward to wearing his yellow survivors t-shirt. Paul is currently a partner in the law firm Rivkin Radler LLP and he resides in Long Island, NY.
Bob was diagnosed with follicular lymphoma in 1997. He was initially treated with radiation. Following a relapse five years later, he did an R-CHOP treatment regimen. Bob elected to undergo two-year maintenance program of rituximab. He is now in remission and is a teacher in New Jersey, where he resides with his wife.
Elizabeth was diagnosed in 2009, with diffuse large B-cell lymphoma. She was 30 years old and the mother of a 2 year old. After three different failed regimens of chemotherapy, Elizabeth enrolled in a clinical trial at the National Institutes of Health. In 2010, she underwent a stem-cell transplant and is now living life cancer-free. Elizabeth resides in Boston, MA with her husband and young daughter.
Kelly was diagnosed with hodgkin lymphoma in 2003, when she was just 25 years old. Her treatment regimen consisted of six rounds of ABVD followed by nineteen sessions of radiation. Kelly's experience with cancer inspired her to return to school to become a registered nurse. Today she is in remission and lives in Raleigh, North Carolina with her husband and three active, young boys.
Mike was diagnosed in 2008 with diffuse large B-cell lymphoma. He underwent six rounds of R-CHOP and then had a stem cell transplant in 2009. Mike's remission and new lease on life has allowed him to run three half marathons and scuba dive on the Great Barrier Reef. Mike resides in Phoenix, Arizona with his wife.
Jill was a caregiver to her father as he has battled follicular lymphoma, then diffuse large b-cell lymphoma. Jill has been involved with LRF as both an ambassador and an advocate. She is an independent health care consultant in the greater Minneapolis region.
Chris's father (Rich Z.) was diagnosed with peripheral T-cell lymphoma in 2008. Chris was an active participant in all of his father's care and helped him to make informed decisions regarding his treatment, including the decision to enroll in a clinical trial at the National Institutes of Health. Today, Chris actively promotes lymphoma awareness through his knowledge of social media and live events. Chris owns his own marketing company and lives in Virginia.
Rich was diagnosed in 2008 with peripheral T-cell lymphoma. He enrolled in a clinical trial at the National Institutes of Health and after 650 hours of chemotherapy he is now enjoying a cancer-free life. In 2013, Rich was instrumental in encouraging his local lawmakers to proclaim September as Blood Cancer Awareness month in Manassas, VA. He enjoys spending "healthy" quality time with his family. Rich lives with his wife in Virginia.