Support & networking groups, E-mail Chat Groups/Listservers
Gilda's Club, Inc.
(888) GILDA-4-U (445-3248)
Website: www.gildasclub.org
This website contains information and links to the Gilda's Clubs chapters which provide support groups and psychosocial services at many locations nationwide.
-See Emotional Support section for complete listing
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Lymphoma Research Foundation (LRF)
(800) 500-9976
Website: www.lymphoma.org
LRF sponsors a support group in Los Angeles, assists people in finding a local support group and sponsors a nationwide peer support program.. -See Lymphoma Organization section for complete listing
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The Wellness Community
(888) 793-WELL (9355)
Website: www.thewellnesscommunity.org
This website has contact information for the numerous locations nationwide offering support groups to people with cancer and their loved ones.
-See Emotional Support section for complete listing
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E-mail Chat Groups/Listservs
There are a variety of on-line discussion groups or listservs for patients and their families to exchange information, resources and support. Participants can send messages to a central mailing list and then other members can respond with their comments to everyone in the group. (Note: You are not obligated to provide your full name when registering for e-mail or listserv groups. The information that is exchanged is not monitored for accuracy by professionals.)
To participate in Web Magic Lymphoma Message Boards (formerly Lymphoma Research Foundation's Message Board) for Hodgkin's Disease or non-Hodgkin's lymphoma, please visit Web Magic at http://forums.webmagic.com/ubbthreads/ubbthreads.php?Cat=&C=1.
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Hodgkin's Disease
To subscribe, e-mail listserv@solar.org. Leave the subject line blank. The message should read "Subscribe Hodgkin's." For more information, or to read archives, please visit www.hodgkinsdisease.org.
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Chronic Lymphocytic Leukemia (CLL)/ Small Lymphocytic Lymphoma (SLL)
Anybody can post messages. To subscribe to the list and receive information, send an e-mail to SLL-CLL-edu-subscribe@yahoogroups.com.
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Diffuse Large Cell Lymphoma
To subscribe, e-mail nhl-dlc-subscribe@yahoogroups.com. To post messages to the group, e-mail nhl-dlc@yahoogroups.com.
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Follicular Lymphoma
To subscribe, e-mail nhl-follic-subscribe@yahoogroups.com. To post messages to the group, e-mail nhl-follic@yahoogroups.com.
Forum on Lymphoma is for patients, family, educators and medical professionals interested in sharing information and/or support for those affected by lymphoma. To subscribe, send a message to lymphoma-subscribe@yahoogroups.com. To post messages to the group, e-mail lymphoma@yahoogroups.com.
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Gastric Lymphoma
To subscribe, e-mail gastric_lymphoma-subscribe@yahoogroups.com. To post messages to the group, e-mail gastric_lymphoma@yahoogroups.com.
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Mucosa-Associated Lymphoid Tissue (MALT)/Monocytoid Lymphoma
To subscribe, e-mail nhl-malt-subscribe@yahoogroups.com. Leave the subject and message lines blank. To post messages to the group, e-mail nhl-malt@yahoogroups.com.
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Mantle Cell Lymphoma
To subscribe, e-mail listserv@ucsd.edu. The message should read, "Add your e-mail mantlecell." For example, if LRF were to sign on, we would join by sending the message "add LRF mantlecell. To post messages to the group, e-mail mantlecell@ucsd.edu.
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Mycosis Fungoides/Cutaneous T-Cell Lymphoma (CTCL)
To subscribe, e-mail listserv@listserv.acor.org. The message should read "Subscribe CTCL-MF." To post messages to the group, e-mail ctcl-mf@listserv.acor.org. Archives can be found at listserv.acor.org/archives/ctcl-mf.html.
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Non-Hodgkin's Lymphoma
To subscribe, e-mail nhl-subcribe@egroups.com. To post messages to the group, e-mail nhl@egroups.com.
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Non-Hodgkin's Lymphoma - Low Grade
Information posts only; it is not a chat group. To subscribe, e-mail nhllow-subscribe@yahoogroups.com. To post messages to the group, e-mail nhllow@yahoogroups. For more information or to become a member, please visit http://health.groups.yahoo.com/group/nhllow/
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Non-Hodgkin's Lymphoma - Other
A discussion list for postings of alternative, complementary and conventional therapies. To subscribe, e-mail nhl-other-subscribe@yahoogroups.com. Leave the message line blank. To post messages to the group, e-mail nhl-other@yahoogroups.com.
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On-Line Central Nervous System Support Group
Website: www.briantrust.org
Email: lymphoma-captain@braintrust.org
A CNS lymphoma survivor contacted LRF to let us know he is facilitating a lymphoma support group through the Brain Trust organization. Contact the above website for more information.
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Waldenstrom's Macroglobulinemia
International Waldenstrom's Macroglobulinemia Foundation's (IWMF) WM Talklist~ to subscribe, send e-mail to: Join-iwmf@iwmf.talklist.com. Include your full name in the subject line and leave the message blank.
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WSMG NET listserv
To subscribe, e-mail listserv@listserv.acor.org. Leave the subject line blank. The message should say "Subscribe WSMG NET your name." To post messages to the group, e-mail wsmg-net@listserv.acor.org. You have the option to subscribe anonymously by typing "Subscribe WSMG NET anonymous." Please note that your e-mail address will appear on posted messages even if you subscribe anonymously.
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